Case Manager

Location: New Haven, CT, US

Job Description:


RN Case Managers provide education, treatment support, and access for patients with ultra-rare diseases. Case Managers ensure patient treatment compliance, communication with both internal and external customers, provide resolutions regarding any interruptions or barriers to care, and aid in the overall coordination in the quest for best in class care.

Principal Responsibilities

  • Build/maintain patient relationship in order to educate, provide ongoing treatment support and assist with gaining access to therapy.

  • Facilitate the coordination of health care provider and payor resources to ensure access to chronic complement inhibition therapy for patients with PNH and aHUS.

  • Obtain patient consent and comply with privacy rules

  • Develop and implement case plans for patients

  • Anticipate and prevent or identify and resolve (through coordination of efforts and resources) interruptions or barriers to care

  • Maintain records, complete reports and communicate case status and direction

  • Organize resources for patient assistance

  • Establish and maintain partnerships with field staff

  • Attend patient meetings, conferences and trade shows to educate patients, providers or payors regarding disease/product information and case management services

  • Maintain a current knowledge base regarding insurance options and requirements (state, federal and commercial payors)

  • Contribute to the development of departmental policies, procedures and special projects

  • Participate in and complete required pharmacovigilance training

  • Identify those areas of work and standard operating procedures related to pharmcoviligance


  • 3-5 years recent Clinical Nursing experience, case management, or insurance experience with a strong, successful track record

  • Experience working in a multi-disciplinary team environment for continuation of care

  • Strong communication and negotiation skills

  • Ability to handle sensitive issues with opposing opinions

  • Work independently and handle special projects

  • Ability to multi-task and use up to date technology

  • Some travel requirements (15%)


  • Current RN licensure required

  • Bachelor’s Degree in Nursing preferred


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